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“Self-help And Hospice And Palliative Care – Potential, Obstacles And Needs (Self-Pall)” Metadata:

  • Title: ➤  Self-help And Hospice And Palliative Care – Potential, Obstacles And Needs (Self-Pall)
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  • Internet Archive ID: osf-registrations-zc23e-v1

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Previous research findings show positive effects of self-help, because people can exchange ideas, enjoy company and community with others in similar situations, and benefit from the experiences of others. The question arises as to what extent self-help can offer support to people with serious, progressive and incurable cancer and other diseases. Relatives and close friends of people with illnesses also find themselves in situations where they could benefit from the support of others in similar circumstances. Nevertheless, it is largely unknown to what extent self-help plays a role in hospice and palliative care, or to what extent hospice and palliative care plays a role in self-help. We know from reports by those affected that it is difficult for palliative care patients to find a suitable self-help group. At the same time, in recent years, for example, metastasis self-help groups have been established in cancer self-help. It is largely unclear to what extent patients and their relatives in hospice and palliative care have a need for self-help and whether they are aware of the support that self-help can offer. Factors that promote or hinder self-help at the personal and structural level have not yet been explored, taking into account the often fluid transition between curative and palliative care. Conclusions about which forms of self-help activities are suitable for patients with incurable, advanced cancer and their relatives cannot be drawn from the studies conducted to date. How structural and political conditions influence the interaction between self-help and hospice and palliative care remains unclear. The aim of the study is to investigate how patients and relatives in hospice and palliative care are aware of and use self-help services, how existing self-help groups deal with issues surrounding dying and death, how self-help and palliative care already work together, and what conditions need to be created to optimise cooperation between the two areas of care.

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  • Added Date: 2025-09-03 11:26:15
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