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  • Title: ➤  Behavioural Research In Intellectual Disability Development And Growth Evaluation (BRIDGE) - Developing An Informant-report Measure Of Everyday Functioning For People With An Intellectual Disability
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There are 1.5 million people with an intellectual disability (ID) in the UK and over half of these present with ID associated with either a rare genetic syndrome or a co-occurring condition such as autism. Within ID and typically-developing (TD) populations, everyday functioning may be evaluated via measures of adaptive functioning, intellectual ability, and executive functioning. Indeed, previous studies of rare genetic syndromes associated with ID have commonly employed informant-report measures of adaptive functioning (e.g. Vineland Adaptive Behavior Scales and Wessex Questionnaire) and executive functioning (e.g. Behavior Rating Inventory of Executive Function (BRIEF) and Childhood Executive Functioning Inventory (CHEXI)). Although these informant-report measures effectively examine unitary constructs, the focus on unitary constructs precludes comprehensive assessment of individuals’ everyday functioning. For example, informant-report measures of adaptive functioning do not capture variation in executive functioning or intellectual ability. Additionally, existing informant-report measures of executive function were predominantly developed for TD samples and thus often lack face validity for individuals with intellectual disabilities. Furthermore, existing informant-report measures are often lengthy, necessitating a shorter measure that is more accessible to parents/caregivers of individuals with intellectual disabilities. Overall, there is a need for a comprehensive and accessible informant-report measure of everyday functioning for individuals with intellectual disabilities.

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